






Cancer as a form of sideshow entertainment...(Sorry, I'm on this weird circus kick lately)
When I got there yesterday, none of them knew much more about the whole mess than I did, and then all of a sudden they were all having a meeting about it.
Things are still pretty up in the air it seems, but it's very likely that my appointment on Monday will be my last. He dug out the monster molar on the lower left, which was a very miserable, nasty experience, deep into the jaw bone to get all the decayed root bits.
He was going to excavate the root tips of another tooth that fell out some years ago after mondo abscesses, but said he changed his mind and is going to do it Mon when I come to get sutures out. That is a good thing, but still a bit nerve-wracking if Monday is my last appt.
When I was leaving, the assistant said something about "it looks like they're shutting us down." Now, what I heard was July, but she made it sound like NOW.
On one hand, I'm glad to have that molar dealt with; on the other, before, I could at least chew somewhat on that side. The molar on the right is an even smaller piece, because more chunks have fallen off of it. Now, I lost that piece to chew on, and now I'm not going to get my bridge or whatever he was talking about to replace it, and I'm kind of in a worse position than I was before. Better infection-wise, but not so good eating-wise. It's exceptionally depressing, actually. I am sick to death with dealing with my teeth, and constantly having to switch dentists depending on my situation, just to fix whatever is the immediate crisis. I thought I was actually going to get to stick with this guy for a while and get some problems solved.
Oh well.........I have to go in today to get a "check up" on the extraction from yesterday. It seems pretty silly, driving an hour each way so that he can look inside my mouth and say "yup, looks fine" and send me home. Maybe I can con him into doing some fillings while I'm there, or a root canal or two.
Yeah, right.
I myself haven't been up to too many chores lately. I've been getting better at listening to what my body wants along the recovery path, but the last few days, all it's wanted is rest. There's been significant pain lately, right along the incision line and just above and below it, with lots of swelling in the pubic area. Some sort of nerve endings are working on something in there, and it's not any fun at all while they do it. I've been napping almost every day (much to the delight of two gray kittycats), not pushing myself too far while still being somewhat up and active most of the day, and yet still have days like this where all I feel like doing is going back to bed for a month. It's really frustrating and discouraging.
It feels like I've made precisely zero progress sometimes...
And yet, as usual, I don't LOOK sick. Right? Right.
Then again, the way today is going, I might not have to worry, because we might blow away to Oz. The winds we get up here at this end of the state boggle my mind. And this is just a windy day in the spring--it's nothing at all compared to the winds we get during some of the winter storms. I feel pretty sorry for the organizers of Kite Day up in Chico today. Aimee kindly invited us to join her over there this afternoon, but our plans at home intervened. I'm afraid that if the winds in Chico are anything like they are here, all the kites are either going to snap in the wind, or tangle into one giant ball in the sky. Brings on an interesting mental picture don't it?
Let's see, I've been doing lots of my indoor gardening, fussing with houseplants, lately. I genuinely love being in a house full of plants, so it's a rewarding new hobby. I'm reading up, learning what the ones I already have are and finding interesting new ones. It's also brought back funky memories of plants we had when I was a kid and Mom did lots of indoor gardening, back in the days BC--before cats. Finding Gracie-proof places to put plants has turned into a fun game for both me and Gracie. As much as I want to kill her when she gets into them, it's actually pretty funny watching her try to figure out how to get to them. The wheels turning in her head are quite visible.
Oh, and after some delays, I finally get my dental treatment started on Thursday. First the icky molar in the back gets extracted, then Friday is a post-op of a sort, and Monday I get the stitches removed. I've never had something like that take three visits before, but ok. It's just a lot of driving up to Paradise, but I already committed to that, so it's alright.
Oh yes, we are unfortuately dealing with one other medical problem in the house besides mine. My gorgeous baby girl dog is having a foot problem. We THINK it's an osteoarthritic-aging thing, where she's just getting stiff and sore. She's really favoring one front foot, and limping like crazy, BUT, of course it doesn't really prevent her from doing anything she really wants to do. If it did, then I'd be worried, but she goes and goes just like normal. What concerns me is how she'll sit and pant as if in pain afterward, and favor that paw. So, she's now on special (read: EXPENSIVE) doggie food for joints and a doggie version of motrin for the inflammation and pain, and we're hoping that after a period of time on both of those, she'll show some distinct improvement. It's the waiting that's driving me buggy. I want her better NOW. Well, it all just means that she's even more spoiled than she was before. I see Doggy Steps in my future. Anything for my girl.
I think that's about it from our windy part of the world. I guess I've stalled long enough, and I certainly don't have anything else interesting to say. I need to find the energy to drag myself up to the shower so then I can drag myself back downstairs to find something to do. It will probably involve yarn. It's been far too long since I did any serious knitting, and I'm working on getting my fingers nimbled back up. Off I go.
PS: Movie review-- Bolt is funny. Quite funny. The hamster in Bolt is funnier than shit. Seriously. Rhino is my new hero.
Ok, I just wanted to let everyone know that I'm working on my "survivorship plan" and finding out that it's a lot of work!
I am using everyone's suggestions to try and figure out what I need and what my body wants, and learning as I go along.
Most importantly, Lloyd and I have started a notebook keeping track of things like how much I'm sleeping and how I feel each day; how much of the day is active, "up" time, how much exercise, when we're out of the house, how I feel afterward and how much of my day is rest time. And, there is rest, and there is Rest. We have decided, for the purposes of this exercise, that real Rest time, whether I actually fall asleep or not, is defined as time when I am laying down, not doing ANYthing else, like reading, computer-ing, watching tv--just quiet, laying down, resting and hopefully sleeping.
After only a few days of keeping the notebook, we've observed that 3 hours of being up and active, whether it's here or out shopping, is about my limit. And, each day around 3pm is when I start crashing and need to go to bed and do my real Resting, even if I've been sitting all day long. My Resting generally lasts about 3 hours too, I just get up when I really feel ready to get up.
So, progress is being made. I have a couple of great books on cancer survivorship that I'm reading and using to help formulate my plan, such as it is. Mistakes are being made, lessons are being learned, but we're getting there.
Yesterday, I was up and active doing some of my nice indoor gardening for a couple hours, and it felt great, and when it stopped feeling great, I put away my toys and retreated to my rocker. I am having fun filling my house with plants (beauty AND oxygen!) and even put a plant in each boy's room. It is satisfying my spring fever gardening urges, just as I'd hoped, and is entirely frog free. Ha! Take that frogs. I've made a couple terrariums and I think I'm tired of them now. It was a short phase. I'm just planting things now.
That's about all...right now I am in my rocker by the fire, with two doggies on their smooshy beds, and two kitties going batshit with a furry mousie, going to read my survivorship book. Life is good.
You know what they say about the best laid plans....
I guess the good side is, I got LOTS of sleep and bed rest. Lots and lots and lots. The bad side was, well.....I woke up maybe a half house after to going to sleep, projectile vomiting. Mondo fevers-as high as 104.3-and sweats (by this morning, my skin was covered in fine salt!), massive body aches and pains in different places, diarrhea, you name it. It wasn't until somewhere after 3:30 or4 that I was able to get up and STAY up long enough to take a shower, crawl downstairs to get a couple things. Now, THAT wore me flat out for hours.
I'm used to feeling like I've been beaten, but this pain was new. If it would have stayed on the lower right, where it's been a lot of the time, I was going to make Lloyd take me to the ER for an appendix check-in. Luckily (ha ha), it moved all over the place and felt far less appendix-ish and my fever was going down, slowly, but surely. I wasn't able to drink liquids last night, so it wasn't until after I took my shower this afternoon and drank some water that I was able to get my temp down into a normal range.
So, after sleeping nearly all day-I think I've been "up," but still active-ish, so I'm drained enough to head to bed.
Just wanted to mention those before I got sidetracked!
Ok, onward. Yesterday was the one-month-post visit with Dr. Mazj, or as it turned out, Roni, his PA. It was actually a very productive, very helpful visit. I'll try and share everything we discussed and sorted out, but it won't be in any sort of order, so you'll have to pardon me if it's rather disorganized!
So! After all of this, I had a little family meeting with the kids at dinner last night to talk about my recovery and rest needs. It's hard right now for them to understand, because I don't "look sick" to them, so it doesn't make sense that I have to lay around and do nothing for some period of time. And, it's harder than hell for me to tell them no when they come and ask for something. It'll be something simple, like "I can't find the tylenol" in the kitchen cabinet, and I get up for 2 minutes and find it for them. Problem is, that scenario will get repeated about 8 times and I'm perpetually up-down-up-down. Hopefully our talk last night will help, both on their side and on mine, because my own guilt at not helping them or taking so much time for myself is part of the overall problem. I have to work on that part in my own head.
That, perhaps, is the biggest, hardest, most confusing, frustrating, maddening part of the entire equation right now.........................................
The central theme of every bit of advice and direction I get on how to structure my recovery period is to listen to my own body and not do any more than I can handle, stay within my own limits, let my own body dictate the amount of activity I do, listen to my body, listen to my body, listen to my body, and listen to my body.There's terrarium 2, down there below.
I guess we'll see how they behave and how well they live before I go out and stock up on teeny tiny houseplants to make more. Well, I do have one more container I REALLY wanna use, so I'll probably at least get plants for it so I don't just have an empty jar sitting around.
This will undoubtedly sound exceptionally stupid, but the dilemma (boiled down to its simplest components) is trying to figure out how to get all healed, recovered, "better," or whatever you want to call it.
Now, what I really want is a doctor to tell me to get up each morning and do A, B & C for 34 days and then do X, Y & Z for 63 days and then I will be all better. Lacking that, I need to figure it out for myself and I need input from others. Extra brains!
See, the problem is, I am supposed to rest and recuperate. But how much? For how many hours each day? I am supposed to get a little exercise. How much, how often, and how do I gradually ramp it up? (I have to ask the doc if I'm cleared to start yoga classes.) I need to figure out how to get past the guilt trips where I feel like I'm supposed to be doing something productive every minute of the day. But, I need to do something productive sometimes...right?
When you get sick, you get a treatment plan. Now I need the opposite of that. I need a recuperation plan. I have to do enough resting and recovering so that I actually get well, and I'm not sure how to go about that, or how often I should get up and out of the house and pretend to be a normal person without wearing myself out way, way too much and setting myself back.
So, input is needed. Please!!! Email me or comment here, I'm really interested in what everyone thinks I should try to do.
Today, I think I'm going to test out my gardening solution. That will be my "active" part of the day. I'm going to attempt to get my gardening fix from houseplants, and attempting to make a terrarium. I have vague, very faint memories of having one with Mom when I was a kid at one point. Or am I imagining that? But, it seems like a good idea. I can have the whole "fussing" thing that's kind of like spending time out making a garden (and I can do it outside when the weather cooperates) and make little houseplant terrariums. I saw an article in Real Simple magazine and got hooked. I've always like planting in odd containers, so this appeals to me. I guess we'll see if it satisfies my spring fever urges.
The things I am going to do outside this year are simple. We've decided we have to forgo the finch feeders this season, because the seed price has about quadrupled, and we just can't afford it. So, I'm going to just rake up the rock in that corner and plant a ton of sunflowers all over the place. Gorgeous flowers; eventual bird food! I've also got a really pretty trellis that had morning glory until the freeze killed it, so I'm going to clean that off, and plant some nasturtium seeds beneath it and see what happens. Nasturtium seeds tend to grow in what seems like air sometimes, so I should have to do too much work to rough up the ground under the rock for that. Both of those are plant it and leave it kind of projects, so no frog guilt!
Ok...I think I have updated all that needed to be updated, and rambled enough for one day. Please send input!!! I'm off to eat something squooshy and horribly bad for me.
I had my 1-month-post-chemo CT scan this week. I made the trek up the mountain & showed up for it yesterday, only to discover that someone, somewhere along the line, was supposed to have given me a bunch of barium contrast solution to drink and told me to do things like fast before the test....and no one had. So, they corrected THAT problem, posthaste, rescheduled me for today and sent me away with lots of nasty stuff to drink.
Now, I'm fighting off something of some sort......some type of sniffly, congested head kind of thing that has to go away before Friday. Friday, I have an appointment with Feather River's dental department to try and take care of some of this massive damage happening in my mouth. Apparently, the chemo took its toll on my teeth as much as it did on everything else, and I've got a definite abscess going on at least one side.
Monday, I go see Dr. Mazj for a post-chemo check up, and later that week, a radiation check up. Just having to get up and be somewhere is exceptionally disturbing! It's hard mentally because it feels like getting up and going to radiation or chemo again.
Physically, I'm very, very tired. Very tired. Figure in the part where I'm fighting off a cold or something, and you've got the whole picture.
I go sleep now.