Wednesday, September 14, 2011

The Last Post



Stephanie's Obituary in the Chico Enterprise-Record, click here

All,

As the person that Stephanie trusted as her 'CIO' to post to her wonderful blog, I wanted to let you know that Stephanie passed away at 2:30am on September 13th.

Because I don't know many of you, much less how to contact you each personally, I felt you would want to know and this was the only way for me to reach many of you.

I have been given very few details, I will pass them on to you as I was told...

She went into the hospital at 5:00p on the 12th with Pneumonia, as you know her system was weak from all the various other things she was battling. I received a call the next morning informing me that she passed overnight in a hospital in Chico, CA.

If you have questions, please post a reply here and I will try my best to reply if I can with any updates.

Please keep her in your thoughts, I know I will.

We love you and miss you Steph...

~~~~~~~~~~~~~~~~~~~~~~~~~
**Update: service/informal gathering for Stephanie, scattering of ashes and if you wish to make a donation 'Memorial Gift' in Stephanie's name**

There was a service on 9/17 and a gathering on 9/18 for Stephanie by family and friends.

Based on her final wishes, she has been cremated and her ashes were scattered in the San Francisco Bay on 9/28/2011. I've included 4 photos, 1 of the boat we went out on in the bay, and 3 (1 at the top) of her ashes as they were scattered. For those of you who are familiar with the area, that is the Golden Gate Bridge in the background.






Lastly, on a somewhat personal note, if you can, please make a donation to the American Cancer Society in her name. Your donation will go to research to fight the disease and to helping people who live with it daily:

https://www.cancer.org/involved/donate/donateonlinenow/index> item #2: Memorial Gift

Monday, September 5, 2011

Back in the Saddle Again...NOT

See how much better my ARM looks? It's getting those nice yellowy edges just in time to go in tomorrow and get blood drawn out of the *other* ARM for this week's labs.

And, apparently, my body isn't too thrilled with this return to chemo after so long. There were far too many weeks when I was "bumped" thanks to low white cell count - as many as five, if Lloyd and I are remembering correctly - which had me wildly off schedule. Then I had to take my little unplanned three-week "vacation" from chemo while we were dealing with getting the air conditioner fixed (someone just had to be HERE - 3 different times), handling Oliver's surgery, the kids getting back home - you name it.

Well, add up all of that time away from chemo. The answer really isn't pretty.

My system is entirely freaked out now, and it seems like all I can do is either sleep, barf, sleep, lay around, or if I'm having a good time, read. I think the term is "shock to the system," don't you? I think that many weeks of no poison might have affected me a tad.

A week or two of sleeping might set me back to rights, assuming that the lab tech I see tomorrow doesn't leave me with major internal bleeding in my other arm!!!

Friday, September 2, 2011

It's "Back To ________" Time!!

Insert your "Back To" item - I kinda started this a few days ago, but technical difficulties interfered... So,for the kids, this week was back to school. All three of them are in one school again, for the first time since we were back in Fremont. It's still hard to believe that Anna's in high school, for everyone, including her! I still wonder where that not-quite-seven year-old went when I look at this gorgeous young woman in front of me. She's not 100% sure how she likes high school yet, but, it was only the first day. One very positive note, in her opinion, is that not a single one of her teachers did the "you must be Conner and Trevor's sister" bit on her. That is a sure way to make a very negative first impression with her!

For me, its "Back To Chemo" time. I feel like it's been forever since I've been there, because I've had so few treatments this summer. Stupid white blood cells!! Let's hope after these 3-4 weeks I've taken off as my "chemo vacation" that all my cells of all types have had time to build themselves back up to the right levels and I can get back on track. The sad thing is, I hate not going to chemo more than going - actually, I don't dislike going at all, because then I feel like I'm doing something to fight this fucker instead of just sitting there and letting it eat me.

SOOOO, I'm sitting here jumping out of my skin when the phone rngs, afraid it's the cancer center telling me not to bother coming. Today is my pre-chemo doctor's appointment, and I really need it. My doctor is an Oncologist/Hematologist, and unless I miss my guess, that second part means "blood doctor," and I could really use one of those today. Thanks to my least-favorite phlebotomy technician, I have THIS

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decorating my arm!

Since this picture was first taken, the blood has welled up in a lump, then started to pool out further into my arm, just as my PA, Roni, said it would. Right now, it's about 4" long x 2" wide at the longest/widest points.

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It hurts like the giant bruise it is, but at least I know that too is normal, in order for the blood to slowly resorb into the tissues. My wonderful chemo nurse were suitably horrified at the sight of this booger and told me not to go back to that tech! I'm going to have to see if that's at all possible.

What a wonderful beginning to my return to chemo! Now, just wait - my next blood test will show I'm low on RED cells because half of them bled out into my arm from the last test. Surprise, surprise, surprise...

Thursday, August 18, 2011

YAYAYAYAYAYAYAYAYAYAY!!!!!!!

IT'S NOT CANCER!!!!!!!!!! My baby kitty does NOT have cancer!!

Frankly, I was so surprised when the vet told me this that I almost didn't believe her. She was actually kind of surprised too - it usually IS cancer when a growth like this shows up on a cat.

Thank the deity of your choice... This is some happy news that I really, really needed.

Wednesday, August 17, 2011

Greetings, Earthlings

Howdy all. Nope, I haven't been abducted by aliens or some other strange fate. I just really, really haven't felt like writing anything - blog, emails, anything.

We've had an eventful last couple of weeks, in the sense that all kinds of small to medium level things have been either wrong, or just going on, and I've felt wiped out. I've actually felt the need to take an impromptu vacation from chemo in order to deal, and just to be home.

For one, our air conditioner decided to take a double crap. The first, most obvious part is fixed; the unit outside needed a new motor, and we have this neato little box with metal and heavy wiring-ish things and stuff in it, and it's freaking *melted* inside! I can literally say that the A/C had a meltdown... So, that got fixed, after much stern demanding of reasonable service appointments, not a two-week wait, but it still wasn't cooling the house very well. My intrepid husband decided to play detective and climbed in the attic and found that the cover to the big fan box up there is standing up a good four inches or more from the top of the box, and some of the ducts weren't connected right, so it was pumping cold air into the attic. The service tech comes back on Thursday.

Meanwhile, the kids came home, so there was the usual chaos of getting back, getting unpacked and getting settled back into home. And, of course, Anna had been separated from her other half/twin for the whole summer, so they weren't home a full 24 hours before we were having an extended sleepover.

Meanwhile, I took my sweet baby Oliver Pooterbug kitty into the vet last week because he'd been having some weird problems with his fur getting mats, for the first time in his life. He's not even a full longhair, more of a medium, and I've never had to brush him before - now all of a sudden, he's getting dreadlocks in his armpits. Well, Brenda examined him very thoroughly, and couldn't really find any cause for this sudden increase in dander he was having, except maybe an allergy. Checking him over so thoroughly, what she DID find was a lump on his tummy, not even as big as a pea, but almost certainly a little melanoma. ::sigh:: 'Cause, you know, we needed more cancer in the house. His surgery was yesterday, and now he's got about an inch of stitches that will be taken out in two weeks, one leg shaved in what looks almost like a poodle-cut (for the IV) with some hellacious bruises on it, and he had two rotten teeth extracted, since we agreed to the suggested tooth cleaning while he was under, and Brenda said they were seriously rotten. It could explain his atrocious breath, that's for sure.

We should hear the results of the biopsy in a few days. We've been keeping him confined in the bedroom, and not letting him into the closet (his favorite place - because we were sure he would crawl back to the farthest corner and hide) but I don't think I can keep it up much longer, because the whole "anesthesia" "groggy" thing was seriously false advertising!!! Mr. Perpetual Motion was driving us so crazy from minute one, to keep him restrained from jumping on the counter and force him to rest when we first got him home, we actually had to lock him in the shower!! You could tell he was stoned, from the look in his eyes, but it was not slowing him down ONE bit! We finally just let the dogs in and closed the bedroom door and he's been sleeping either on me or next to me pretty much the entire time since - in short, acting 100% normal. Purr, purr, cuddle, cuddle. He doesn't even act like he's in pain, but he's getting his pain meds anyway, as soon as Lloyd wakes up to help me.

And... Other than those things, I don't remember, but trust me that there's been *STUFF* going on, and there is more stuff to come, as we get closer to the kids starting school. Of course, I also have doctor's appointments, Lloyd's birthday is coming up, I'm finishing up the bathroom project & other random things around the house, and I'm not out of chemo forever. I feel like I'm doing something very wrong taking any time out at all, but we never could have got the air conditioner fixed unless I did! We were just up against a wall with needing to be in too many places at the same time. It sounds funny to say I chose air conditioning over chemo, but it's damn hot up here!

So, I think that's about it. There's nothing earth-shaking going on (except my poor kitty!), just mainly lots of minutiae to deal with and not feeling like sitting down and writing anything. The stress of anything makes my fibromyalgia just kick inti high gear, so pain has been the name of the game, and some days all I feel like doing is sitting down and falling asleep! 8•) Today I have to keep watch over my baby, so I think that's a good reason to rest...

Wednesday, August 10, 2011

If It Ain't One Thing ... It Sure As Hell Seems To Be Another!!!

Well, with many loving thanks, my darling husband finished painting the bathroom for me.

It's finished, and the paint is curing, just in time for the air conditioner to take a crap! Doesn't that sound fun? All of you dealing with heat and/or hot flashes can sympathize. The repair-savior is s'posedly on the way.

Meanwhile, it's naptime. The access to the unit is, of course, in my closet. I have decided not to care. I sleep in front of strangers every week at chemo, so why not while one marches through my room?

Who **CARES** ?!?!?!!!
It's HOT.
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Monday, August 8, 2011

Shortest Paint Job Ever By An Idiot Who Overestimates Her Capabilities and Just About Everything Else

Why do I make dumb-ass statements like this? "Shortest paint job ever," day 9/50%- Martha coulda done it in 20 minutes.
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Sunday, July 31, 2011

Here we go!

I finally got all the prep done, and used a brush to do a little it on each wall, just too see what looks like, if I'm happy with the color.

I'm happy! Tomorrow we load up the rollers for what I suspect will be the shortest paint job ever. Yay!
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Friday, July 29, 2011

Before.... (and eventually after)

Did I need to start another of my crazy home renovation projects, that always take longer than planned; never go quite as planned; and transport me to a parallel universe while I'm working on them? Oh, and in a 5' x 7' (short wall), 8' (long wall) tiny little water closet with no ventilation at all.

The answer is probably no.
Yet....the other answer is probably yes! Things like this are good for me from time to time - something physical and creative with a finite product having been created at the end.

Wish me luck! Lime green paint, here I come! 8-P
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Quick addendum-slash-product-endorsement -
As I get started, I'm trying to be smart and get all my materials together, and plan out my project before I just dive in. (this is a new approach for me) I bought a couple of rolls of that new "Frog Tape" stuff they're advertising, and, in this new organized mode, tested it out before I had taped off the entire room. (See how good I'm being?)

Holy crap.

It actually WORKS!!! Straight lines! No paint seep! Damn!! Why didn't they have this stuff when I painted Anna's entire bedroom in alternating-height, alternating-3-color-combination sets of horizontal marine blue stripes and nearly ripped my hair out?

Anyway - Frog Tape. It's neon green. Go to the website and read the directions for using it on a textured wall, and it really, truly works.
End product endorsement.

Monday, July 25, 2011

2+2=11 or 12

Well! Wasn't that a surprise! We have all always known that math is not my strong suit. Ok, math and I are not really even on speaking terms most of the time.

Last week I texted my super-brainiac kid on his vacation in NJ to ask for help figuring out the capacity of a space in cubic feet, working from the dimensions in inches, which is a perfectly acceptable thing for a math-moron like me to not know how to do. Right?

Right. But, I *have* aways thought I was capable of basic addition and subtraction.
Wrong!!!

Ever since Peadog's birthday in May, I've been going around talking about what an old girl she is, and how she needs extra pampering because she's 11 now, which is pretty old for a dog of her breed and size. And I've known perfectly well that her birthday is May 29, 1999.

YOU do the math, because apparently I'm too stupid. Lloyd pointed out to me last night that my dog is a year older than I thought she was - which is NOT welcome news, let me tell you.

Eleven was old enough, damn it! Finding out she's actually 12 is incredibly depressing, and I feel like I've just received terrible, terrible news. I want to treat her like she's made of glass all of a sudden, which is just plain stupid, but I do.

I'd better check my math on a few other things in life!

Thursday, July 14, 2011

An Ode to My Neutrophils

Oh, wretched little granulocytes,
You bounced me out of chemo yet again
Neutropenia keeps me from my weekly toxic cocktail
Guilt-ridden and immunosuppressed, I'm inadequate, insufficient
Don't measure up, when the leukocytes are counted

How I never dream'ed I'd miss the poison kiss!

Suppressed -
You hold me prisoner, wily neutrophils
Baby white cells,
Keep me from raw sushi, hollandaise and Caesar;
Sharing food with my love, or even a straw;
You hold me fast from kissing sick children or gardening without my gloves;
Pitching hay, drinking from rivers, or even spelunking!

Damned bat guano

And yet, tiny little leukocytes,
Do I owe you thanks?
No diaper changing or catbox cleaning for life!

Oh, 'tis a quandary all together, and one without answer,
So long as these temperamental little cells wax and wane
Mischievous smiles on their little cellular faces as they torment me

Thursday, July 7, 2011

Good CT results!!!

******************WOWEEEEEE******************

For *once* I have some actual GOOD scan results to report - some really good ones!

None of my nodules have ANY growth, for the first time ever, AND a couple of them showed a little bit of SHRINKAGE. Trust me, I'm as shocked as you are. I've never had any shrinkage before!

As I told Dr. Mazj, we'll stick with this chemo mixture for awhile, huh?

I'm actually plugged in to the chemo machine as I type this, so we'll go for short and sweet today. I was also very, very sick yesterday - in bed with fevers sick, sick, sleeping all day, so I'm a little late in sharing the good news, but better late than never, huh?

We now return to our regularly scheduled nap. (and the realllllly good new book I've started.....shhhhhhhh....)

Tuesday, July 5, 2011

HIPPO BIRDIE TO TREVOR!!!

WOW, 16 years old today!

It really does seem like it was just yesterday that you were much smaller, very adorkable, and needed a whole section in your closet & drawers for your costumes - for those times when you felt like leaping through rooms with a lightsaber leading the way.

Fewer costumes and lightsabers these days, but still every bit as adorkable!! 8•)

Meanwhile, I seem to have realized that I'll be getting my CT results this afternoon. Eep. Minor anxiety attack in progress.
Making a conscious effort to breathe. Breathe.... Breathe....

Look for info here as soon as I can get it here!!

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Thursday, June 30, 2011

Making fun of others...that's always good clean fun!

If you are so inclined, follow in my footsteps and be rewarded by some true silliness.

Go visit http://www.printsngs.com/natgeo/search/?page=5&q=leopard&q=leopard

If the page is working right, Huzzah! View some beautiful photos of one of natures most graceful climbers and leapers.

If it's not, well....a trip through the gallery pages would have you admiring the many, divergent forms the leopard had been taking, until you reached perhaps MY favorite, in the top Left corner of page 5 where the partial caption warns us of a "snarling female leopard..."

OOOOOOOoooooohhhhh, this is the part where it really got funny, and I laughed so much that the puppies thought Mommy had finally lost it. (those few remaining bits left!)

Ahh, we all need a good giggle once in a while.
Someone at NatGeo needs to have a chat with their database folks. That's all I'm saying...

Sunday, June 26, 2011

Summertime!

Yes, I am pleased to announce that summer has finally happened. Of course, in Gridley, summer arriving means an instant switch to 100°+ temps most days, but what the hell. Rumor has it we'll be switching back to rain again sometime next week, but that only makes perfect sense in this year's weather pattern, right?

Well, like the weather this year, I've been kind of confused lately... You know, the kind of confused where you lose track of all of the appointments you have in one week, taking kids to send them off to see their mother, going to chemo, getting a CT scan..... Yes, I did manage to entirely forget that I had a CT scan scheduled for this week.

I managed to remember in just barely enough time to have Lloyd pick up the contrast mix the afternoon before, but I didn't quite manage to put the news out to all of you folks out there that I was going in to have it done. Ooops.

It's a little late now, but yes, I had a scan on Thursday morning! The scan itself went perfectly well, nothing of any interest to report, as usual. Unfortunately, I don't see Dr. Mazj until July 6 to get the results. I'm definitely not expecting anything interesting - no surprises, nothing worrisome - but of course I will post the results as soon as I get them. I think I'll be less forgetful about that!!

That is actually also the only news I have to share, too. I'm recovering from the combination of chemo and barium (yick!), recovering my taste buds, thank god, getting back into yoga as best i can, and resting when my body tells me to rest.

That's what it's telling me to do right now....I'm exhausted. So, it's nap time. Many mea culpas on forgetting to tell you all about the scan!! You're all going to forgive me, right?!

I plead chemo-brain....

Sunday, June 19, 2011

Happy Daddy's Day!!!

With luck, my own Daddy is probably still sleeping right now - as is my darling husband. What better way to celebrate Father's Day?! A good lie-in, as the Brits would say, followed by a good nap or three, maybe find a way for some BBQ and beer in there, and you've got a pretty damned good day, no?

Well, I think so. Oh, I almost forgot - hopefully someone is driving very fast cars in circles too. NOW Daddy's day will be complete!

I hope to get a chance to celebrate with Dad sometime soon. Today, alllllll the kids and I are going to load up into the car and go out to eat with my husband. Luckily, Father's Day falls before they have to leave for the East Coast this year so we can all do something together.

Also, I've got a couple of friends out there who are celebrating their very first Father's Day today - I hope it is incredibly special guys.

Maybe not a lot of words today, but a lot of sentiment behind the few words there are. At this point in my life, I do not know what I would do without my Daddy, I love it when he's able to come up to see me, whether we go out and find an adventure or just hang around the house -and I miss him terribly when he isn't free to come visit.

Happy Father's Day to my D.O.D.!! I miss you & I love you very much.

Sunday, June 12, 2011

Pretty, pretty things!


Between the incredible flowers Auntie sent for my birthday, and my beautiful young lady - no longer a little girl - dressed up for her eighth grade graduation ceremony and dance, I have been surrounded by gorgeous things lately!

Getting her ready for all of the festivities surrounding graduation has kept me insanely busy the last week, and I apologize if I still haven't written a promised email (Mom, JKB, SDS) or responded to birthdays greetings. I swear, I'm working on it. I'm trying, at least, when I'm not falling asleep on my feet.

Thus, this blog entry will be ridiculously short. I don't have any medical news of huge import yet - tomorrow I should find out if I have enough white blood cells to get chemo this week as planned. I also have a CT scheduled this month, I believe on the 23rd. I'll post the reslts of both of those things as soon as I know 'em.

More info when I have it, I promise! And when I can keep my eyes open,,,,

Saturday, June 4, 2011

Relay Day & So Much More!



Many of you know that my Relay for Life In The Rain And Wind And Mud is today, but I thought I'd fill you in on some other news while I try to wake up this early, ugly gray morning. Conner had to get up and out early for his SAT this morning, so I think some sort of sixth sense woke me up so I could fuss over him about sharpened pencils and granola bars.

And, today is our SIXTH wedding anniversary, as you can see by the gorgeous burst of spring flowers that arrived yesterday afternoon! As I told Lloyd then, sometimes it doesn't feel at all like we've been married for six years, that our wedding was that long ago...and sometimes, it just feels like forever, not in the bad way, but in the way that it feels like there was just never a time when we weren't together.

Technically, the traditional anniversary gifts for a sixth are iron (traditional) or wood (modern) but I'm pretty happy with flowers all the way around!!

In other news.... I got booted out of chemo this week again because

------>(after several hours of sitting there while Helen tried to get blood from my port - both to do my labs with & because they always test; no blood return equals no meds going into the actual vein - pushing about a dozen syringes of saline thru, making my heart rather fluttery & unsure of just what in hell to do with all of this fluid & thus making me very lightheaded and faint as I lay there waiting for the lab tech to come puncture me in the arm to draw my labs, and for the syringe of CathFlow enzyme to go thru my port, ostensibly clearing it out for the chemo to get in, which didn't actualy work, we found out when it had marinated long enough and she STILL couldn't pull any blood out of it; meanwhile the lab results came back, and after all of that, they discovered)----->

I have severe neutropenia again

------>(this being the shortage of white blood cells; specifically the WBCs known as neutrophils, the "baby" whites which I guess are most important of all)----->

with an overall WBC count of 2.1 (3.2-10.6 =N) & a neutrophil count of 0.3 (1.5-6.5 =N), which is kinda sorta REALLY low. Kopeks. <-------LOLOLOL.
(I left that in for humor. I *typed* "oopsie" and that's what I got. That might be my new swear word. Kopeks!! I wonder what the hell it means...)

ANYWAY......
My oncologist and long-suffering nurses, who could very likely be seen at today's event, would if asked, probably have expressly forbidden me from attending large, publicly germ-ridden events, rain and mud or no rain and mud, but it honestly didn't occur to me to ask. It apparently didn't occur to them to bring it up. Kopeks again! Well, hell, how can it be worse than a house full of rotating teenagers?

Well, I probably should be asking the assorted spare teens (not to mention my own!!) to santize and mask up if necessary, and I should probably be carrying a few masks today, lest a stray oncologist catches sight of me, bundled in my "fight like a girl" long-sleeve tee, appropriate event tee of the hour (I think I have three), "fight like a girl" hoodie, rainproof jacket of some sort and giant rainbow'd golf umbrella. Come to think of it, I should be easy to spot. I'll be the one waddling down the track like like a pregnant goose.

A wet goose.

••••••••••••••••••••••••••••••••••••

Kopeks: 1/100 of a Ruble. I knew I'd heard that word somewhere.

Thursday, June 2, 2011

Relay, & the Bestest Friends Ever!



For those who still might not know, I'm participating in the American Cancer Society Relay for Life this coming weekend up in Paradise, where my cancer center is located. I'm placing the same blog entry here, and on my personal Relay for Life page, IF the goddamned thing ever lets me. Please excuse the duplication, if there is one, but I wanted to make sure I reached everyone out there. (their little blog app isn't quite working, like several other parts of their site....::sigh::...)

Anyway: Wowee guys!!  You have *really* stepped up to the plate.  I am overwhelmed with the support I'm getting for Relay. Then again, I shouldn't be, because you guys are here for me all the time, no matter what I need.

I just want to thank you all very sincerely for your donations to my Relay. As a cancer patient, you so often feel helpless. Powerless. I've said it myself, that cancer steals your dignity. Show up at the hospital, drop your pants, and drop your dignity at the door.

Well, thankfully, that's not always true, and lord knows the fantastic staff at FRH try their best to make sure it isn't like that, but it sure feels that way a lot of the time. Relay changes that feeling. It gives me something I can DO to fight back against this b'strd of a disease, for myself ands many others.

And for me, this fight has never really been about myself. I've always felt more worried about the impact on my family and friends than myself. And I'm a bit of a worrier, in case we've never met.  ;-)

Well, this feeling of empowerment is new and different, let me tell you! There is finally something real and tangible I can do to help prevent other families, other people's friends from going through this hell.

And it's not one bit ironic that the ACS slogan talks about creating a world with "more birthdays" when I've been saying for a year and a half now that I will be one rare woman who actually likes to grow older each year. It's even LESS ironic that our Relay takes place four days before my 40th birthday. ;-)  

I hope I can help many more people reach those milestones. Relay is something so simple - just walking a few laps around a track - and it can do so much. That is the most powerful feeling I've had since learning I had cancer.

Thank you all, so, so much, for being part of my Relay, my battle with cancer, and more than anything, my life.  I love you all very, very much!!

Friday, May 27, 2011

And now, my Relay for Life appeal...

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It's time for my blatant appeal for donations:

I'm participating in Relay for Life, an event that helps the American Cancer Society make a meaningful difference in the fight against cancer. This is close to my heart & any donation you could make, no matter how small, would make a big difference in the fight.

Visit my personal Relay page at http://tinyurl.com/3odqz2g
Thank you!!!♥

**********************************
The American Cancer Society - 2011 Relay For Life of Paradise CA:
main.acsevents.org

The American Cancer Society Relay For Life is a life-changing event that gives everyone in communities across the globe a chance to celebrate the lives of people who have battled cancer, remember loved ones lost, and fight back against the disease. At Relay, teams of people camp out at a local high school, park, or fairground and take turns walking or running around a track or path. Each team is asked to have a representative on the track at all times during the event. Relays are 24 hours in length; representing the reality that cancer never sleeps. By participating, you honor cancer survivors, pay tribute to the lives we've lost to the disease, and raise money to help fight cancer in your community.

Relay began in 1985 when Dr. Gordy Klatt, a colorectal surgeon in Tacoma, Washington, ran and walked around a track for 24 hours to raise money for the American Cancer Society. Since then, Relay has grown from a single man’s passion to fight cancer into the world’s largest movement to end the disease. For more information, visit our Relay For Life information page.  
http://main.acsevents.org/site/TR?sid=1030&type=fr_informational&pg=informational&fr_id=31732

Tuesday, May 24, 2011

Many A Grey Day in May

You really don't expect winter storm warnings and dropping snow levels in your nightly weather report midway through May!! One day, I'm outside on my patio swing, thinking it was too hot to stay out very long. The next, I'm drying dogs off with bath towels, because they got soaked just going out to go potty. This isn't our normal weather this time of year, let me tell you.

I know that isn't a good excuse for being absent so much lately, but I do count it as one of the reasons. I've had some trouble getting used to the new protocol, side effects and the whole hoopla.

On the plus side, I've also been working on all kinds of things around the house, things I used to love to do, like sewing, knitting, indoor gardening and even some cooking. The sewing has really been the most fun. So, not all of my absence is because I'm laying in bed, I promise - and if I •am• laying in bed, it's quite likely I'm laying there with my nose in a book and the rest of the universe on hold. I've been reading some stuff lately that has been so good that I resent other tasks, like the minutiae of daily living, that take me away from the book!

{One recent recommendation is "Lost on Planet China," by J. Maarten Troost. I'd read his first book, in which the author follows his then-girlfriend Sylvia to the very, very remote island atoll of Kiribati, where she works in international relations, and he attempts (with varying degrees of success) to write a novel and to pass himself off as Sylvia's husband. That book was funny, and informative. "Planet China" the book took my entire complement of acquired knowledge about planet China the country, turned it upside down and shook it almost violently, until it was good and mixed and didn't remotely resemble what I'd started with - and made me laugh hysterically along the way. I was almost surprised how I never wanted to put the book down, ever--and how hilarious it was throughout, even though it was more educational and fact-packed than some texts I've read! *Great* book!!! And this was his third book - I'm reading number two right now}

We got a lucky break in the weather when Daddy came up this past week, and it was bright, sunny and gorgeous, but not overly warm. In short, perfect. After an unplanned morning detour to take a young lady to the doctor for a UTI that he described by spreading his hands as far apart as they could go. I took that to mean it was a pretty mondo infection. So, got her some meds, and then the three of us went out to lunch at Casa Lupe. That was a nice, rare treat - going out with just me, Daddy and Anna. The two of them have a pretty strong mutual admiration society going, so it really was cool for the three of us.

After that, we tucked the munchkin under a blanket and a few dogs on the couch, and Daddy & I headed up to Chico to do a little exploring. The whole time I've lived up here, I've never managed to make it out to Bidwell Park, pretty much unanimously regarded as the gem of the entire area, and to the Sycamore Pool; regarded by me as the gem of Bidwell Park.

"Bidwell Park … was established July 10, 1905 through the donation by Annie Bidwell (widow of Chico's founder, John Bidwell) of approximately 2,500 acres of land to the City of Chico. Since that time, the City has purchased additional land, such as Cedar Grove in 1922, and 1,200 acres in upper Bidwell Park in 1995. Today, the total Park size is 3,670 acres, nearly 11 miles in length, making it the third largest municipal park in California and one of the 25 largest city parks in the United States.

Bidwell Park is "divided" by Manzanita Avenue. The area west of Manzanita Avenue is referred to as Lower Park and the area to the east is referred to as Middle and Upper Park. Middle Park extends from Manzanita to a point roughly equal to the upstream edge of the Chico Municipal Golf Course. Upper Park is located in the foothills of the Cascade Mountains. It has steep terrain and shallow soils… Lower Park is flat and level with a deep soil structure supporting a thick canopy of trees which provide ample shade for the visitor.… Sycamore Pool [is] located in the One Mile Recreation Area. The pool was constructed in the late 1920s and provides a unique swimming experience because its concrete decks, walls, and bottom are built to contain Big Chico Creek as it flows through the park. A dam and fish ladder at one end allow control of the creek's flow. The dam is raised and lifeguards are present from Memorial Day to Labor Day of each year. " - http://en.wikipedia.org/wiki/Bidwell_Park

Bidwell is, in short, gorgeous. I loved it, and I can only imagine if I were one of the countless Chico State students living with this as my backyard, well, I'd spend a lot of time out in the yard. We were lucky enough to be there before they put up the dam, so the water was no more than a couple feet deep at any given point. I puttered and waded a bit, and eventually, we got either brave or foolish and decided to attempt a crossing. Knee deep water and one HELL of a current made us wonder about our decision making skills once or twice, but we made it. Goodness knows I've spent more than my share of time hip-deep in streams, but those had topography, variation, something to grab your little toesies onto - this was a flat, algae and tiny bit of mud covered expanse of cement with no toeholds!!

••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••

Ok. I started writing this on May 15. One part of the problem is this beautiful fuzzlebug who plops into my lap every time I start typing. But this is really getting silly... Since starting this, I've had... my great visit with Daddy, destined to be my last for quite some time, which leaves me very, very depressed; my latest chemo visit, which would have been fairly unremarkable had Aimee not come to visit, talk about plans for Relay for Life (you can all go contribute to this very important American Cancer Society fundraiser on my personal page at http://tinyurl.com/3odqz2g) & drive me home and watch the TORNADOES touching down in my county and those neighboring (this was quite exciting-slash-terrifying, let me tell you!); the scheduling of my next CT scan for June 23 (urgh); and the very unexpected, very cool phone call out of the blue from an old friend I haven't heard from in the better part of a decade.

Needless to say, a lot has happened, and my blogging has lagged far behind! Ok, I admit it, I suck. So, I'm just going to cut things off here before this becomes an even longer-duration writing!! Whew!

Sunday, May 8, 2011

Definition: Generation Gap

I have now, just now, like, just right now at some god-awful hour of the early am when neither my darling husband or I can sleep, learned what a generation gap actually is.

I just learned that Grace Kelly's family (yes, that Grace Kelly) paid her soon-to-be husband, Prince Ranier Grimaldi (yes, he is that kind of a prince) a $2 million DOWRY to take her hand in marriage, and I was HORRIFIED.

My darling husband actually already knew this fascinating little factoid and considered it totally unremarkable.

That, my dear friends, is a generation gap!!

And for those of you who have never before needed to know, a dowry, or "bride price," is a sum of cash, goods, textiles, land, livestock, or some combination thereof that is paid by the father/family of the bride to the groom/family of the groom in return for his marrying their daughter. This all goes back to the women as property/chattel concept, which is, of course, still in full effect in way too many parts of the world.

Grace Kelly.
How many men, then or now, would happily fork over $2M for the honor of marrying her, instead of it being the other way around? Hmm??? I think HRH Grimaldi was damned lucky that the Kellys were frigging gullible as all hell. Whoever told Princess Grace (and has any woman had a more fitting name?!) that she needed to pay someone to marry her deserves a spanking.

At least. Sheesh!

Sunday, May 1, 2011

Still hanging in … barely

I'm becoming the worst blogger ever! I don't keep up very well lately, but I also haven't had a •lot• to talk about other than sickness and pain.

Having Auntie, Daddy and Josh come up was a fantastic break from he ordinary. Lloyd and the boys went south to see Pop, and my gang came north to see Anna and I. Just having them HERE was all I needed, even if it is boring for them. I was supposed to be reesting and building up those white cells, so I tried to do just that. Auntie helped a lot with that, making sure I took my naps and sat my ass on the couch more than not. We did, of course, make a trip to the brewery for lunch, which is always the highlight of the trip.

Meanwhile, the main thing I've been doing is being in a lot of pain or feeling sick, which are two topics I really don't like to write about much! They're just oh-so-not-cheery!

Monday, I see Andy, and get my labs done; Tuesday I see Roni and find out if my lab values entitle me to come for chemo on Wednesday, or if I have to get another series of booster shots and start the whole process over again.

Happy happy joy joy!


Otherwise, trying to get out of bed is a challenge most days, 'cause when my feet hit the ground, they suddenly don't seem interested in holding me up. I've been trying to yoga-out some of the worst kinks, but today, it's just as if someone is sticking bamboo skewers into my hip (worst) & various other random parts of my body. I just can't imagine that it's at all interesting to read about someone describing her various aches and pains.

Of course, it's even less interesting to have them! Well, perhaps that's incorrect - it can indeed be interesting, but it is by no means fun!! I'll be damned if I'm going to become one of those (prematurely-) old ladies who does nothing but whine about her aches and pains to anyone she can corner. See, all y'all have he ability to just *CLICK* your way to greener pastures if I get to morose and whiny,

The funny thing is, despite the humongous amount of pain that I'm in, I've also got spring fever something fierce. Lloyd and I have been talking all morning about putting in the front garden (as long as he de-toads it for me first) and putting up my patio swing. I'm just dying to be out in this gorgeous weather, and yet walking to the bathroom is excruciating. Maybe Sparky would like to go for a scooter walk …

So, that's about all. You really haven't missed a single thing! There just hasn't been anything happening. We did take some photos at the Brewery, so I'll have to hit the laptop downstairs and put those up. Otherwise..........pain, dogs, doctors, cats, chemo, naps.... Kinda sounds like fodder for a really bad country song, huh?!

Sunday, April 24, 2011

Happy Bunny Day!

I'm so tired that I think it hurts to sleep, much less blog...
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Oops... I was so tired I forgot to even finish the blog post! I'm alive and borderline-well, if manic-insomniac (except between the hours of 4 and 8pm of course) and taking my expensive antibiotics like a good girl while I try to build up enough neutrophils to get chemo in a week and a half.

Note to self, and any interested relatives: Tell me to get labs done Monday or Tuesday.

I know I've been very absent, here, Facebook, and even a certain Scrabble game, but it just seems that I either have too much to do that I HAVE to do, or if I have free time that I plan to use catching up with friends, no matter what time of the day or night, THAT will be the moment I conk out. Like I did before I somehow published this mess of an entry!

So far, I've managed to fall asleep writing this particular entry at least four times by last count. I'm going to finally quit while I'm ahead. Auntie, Dad & Josh are here to keep me company while the guys are on their trip, so I'm happy as a clam!

Monday, April 18, 2011

Stupid shitty crappy defective blood

Sooooooooooooo, we did NOT have chemo today.

After all of the running about all morning, leading us up the mountain bit by bit, once we finally get there, I failed my damned blood test. Blood tests are usually easy. I've never failed one before, and certainly not so spectacularly.

Those nice little baby white blood cells that your bone marrow makes, which I guess are the really important ones — the normal sample range was between 1.5 and 6.5 (don't ask me 6.5 what, I have no idea) and MINE were 0.8 Oops. There was another count almost as low.

I've been sentenced to two weeks off chemo, a series of three shots of something, and we'll see what else when Dr. Mazj gets ahold of me.

I need a nap now.

Hippity Hop!

Hello, Spring? Is that you I saw peeking out from between the rainclouds? Maybe?

Oh, I sure as hell hope so. My little bunny rabbit isn't the only one who's getting cabin fever and itchy paws, pining for sunshine, warm grass, and hours reading in the patio swing. We've had some tiny pockets of nice weather here and there, and it really does bring on the Spring fever!

The doggies have enjoyed the few times I've been able to turn them out in the yard to run in circles or race full-tilt from one end of the lawn to the other and back (Stella), stretch out on the warm concrete and roll in the warm grass (Pea) and eat the warm grass (Sparky). Sparky is a little confused sometimes.

With Easter literally just around the corner now, I can only hope the weather decides to get on board for us. Easter week is extra-super-duper special now, and I want nice weather!!

See, Lloyd is taking the boys on a guy road trip down to see Pop, Kenny and DeDe in Shell Beach, leaving me and Anna to man the fort. They want to have good weather for some hiking/walking around the lighthouse where Ken is a volunteer, kayaking, stuff lke that. They've got all kinds of neat stuff to go do down there, and I was actually getting jealous.

{Stop! Wait! Insert great auto-correct here: It's not as if ima crisply capable}

What I was trying to say was that it's not as if I'm actually capable, not crisply, actually capable of doing things like kayaking and climbing lighthouses, but still - road trip, OCEAN, you know.

And then, the cavalry came riding to the rescue. Er, well, the cavalry *told* me they'd be riding to the rescue. Same thing.
SO, while the boys head south to go play, Auntie and Josh and Daddy are heading north to come play with me and Anna! I absolutely could not be happier!! Instead of us rattling around here on our own, now it's a party! Now I need some nice weather up here too, since Josh has only been up once, in the dead of ugly, ugly winter, and I'd love to show him how pretty it really is up here when you can go outdoors and play.

AND, yes, everyone involved feels better now that there will be qualified adults babysitting ME while Lloyd is gone. I couldn't ask for a better helper than Anna, ever, but it is still a relief that we don't have to handle every last single thing on our own, and these are the three most qualified adult babysitters possible. I can go take a long nap knowing that she's not alone - that takes the world off my chest!

Well, I simply have the best cavalry in the cavalry business.

Chemo today, sigh, but a short one. How short, I couldn't tell you. This is still my first cycle with these new drugs. There's one long day and one short, but I'm not certain on the timing for either. Today is a busy day - before chemo, I get my teeth installed!!! Isn't that exciting?!! I never in my life dreamed I'd be so thrilled about dentures at 40, but considering the very painful alternatives I've been living with since the chemo started leaching my calcium and eating my enamel.....well, it's been a hard road of soft food. We all want to go over to the Sierra Nevada Brewery for a lunch or dinner while everyone's here, so I'm hoping that my very tender and sore mouth and gums have healed and adapted to their new appliances in time that I can order something maye a little more interesting than most of my recent choices. We shall see.

Off to get ready, and to count the days till the party starts!!

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Friday, April 15, 2011

HIPPO BIRDIE TO DADDY!!!
















. . . Dear Daddy!!!!



C'mon, he's a pretty special Daddy, you gotta admit. He deserves the best birthday in the entire world, spaceships and zebras, miracles and whatever else Daddies wish for on their birthday. I'll do what I can.

Love you Daddy! I can't wait to see you!

Friday, April 8, 2011

The morning bedscape...

It's kinds hard to see, but, clockwise from the top left/middle, we have a 65# Stella puppy wrapped in her blankie, because she was cold; a sweet spotty Sparky; the ears of a Pooter-fuzzle; me under Pooter; the Peadog; and an implication of a husband, under the blankets.

And people wonder why we think "king" is far too small a size for a bed! It's...cozy...

Well, day 2 post-transfusion and you know what Cin? You're right... I think I kinda feel better! I had a hellacious bug beforehand, along with the usual chemo, cancer & fibro aches, and the truth is, while I'm not dancing, I feel somewhat decent. That's a big deal for me! I'd ask Dr. Mazj to set me up with one of these more often, buy I suspect they are not cheap, and I suspect Medi-Cal would not like that much.

Speaking of my fantastic doctor, I was really kind of shocked last week to find out it was his birthday...his 40th birthday!!!!!!!

He's the same age as me! That just feels so weird. I hope he made very good use of all that time *I* spent in nightclubs, concerts and following bands around, because I sure didnt! If that makes sense.

Anyway, new blood, even that small amount of it, seems to have done me some good.

Now, if only something could do some of those fucked-up, idiotic, dimwitted, moronic, self-absorbed, pompous, clueless, asswipes in all three or four or twelve parties in Washington HALF as much good, so they would quit using the very real lives of the people who elected them as bargaining chips in some sort of ideological/idiotic war and get off their fat, over-paid asses and do the jobs they were hired to do - BY WORKING TOGETHER.

Some of us live on Social Security, assholes.

Sorry. It needed to be said.
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Tuesday, April 5, 2011

CRAP!!! Pt I. Apologies all around; & Pt. II. Bloooooooooood!

OOOOOOK, I really stepped in it this time.

When I got my CT results, I was in a hurry, and very hurriedly emailed them to the folks closest to me - you know, Mom, Dad, etc., - and somehow in my fucked-up (yet amazingly tumor-free!) brain I thought I had also posted them to the blog.

It took me until right now to figure out that I hadn't.

Oh, I am SO sorry!!!! I know that I have a huge group of incredible, supportive people out there who go to this blog for all the update - as it should be - and I really screwed up. I've been skipping along, la-di-da, thinking I had informed everyone, right on schedule, and by NO means do I want to imply that anyone is less important than anyone else. I just screwed up, and I feel horrible about it!

SO....

What has happened is what I described as scenario C on my blog entry below.  The topotecan chemo drug apparently did shit to the tumor nodules, and the little fuckers decided to grow some. I guess they liked it & thought it was yummy.

The largest nodule is still ridiculously small, as far as I'm concerned. But, it's 18mm, and it's neighbor is 14mm.

It's not little enough for Dr. Mazj.  He is very unhappy with the little shits.  He's changed my chemo treatment again, which means that I am on two drugs again - Cisplatin, which was my very first chemo drug, way back when; and something new called Gemzar.  I will have chemo two weeks on and 1 week off, starting next Monday. It was s'posed to start yesterday, but I am really god-awful sick with some horror show virus that brings the biggest, full-mouth cold sores you have ever seen.

The sessions with Cisplatin are going to be very long, all day affairs, but in some, where I get Gemzar alone, it will be a pretty short. I'm a little confused as to which is which, but I'm sure I'll figure it out along the way.

And I think in some sessions I get both.  And apparently, the day after each chemo session, I will be getting some Neulasta (white cell booster) and a red cell booster in the form of either Procrit or Ferrlecit. I still have some questions about that.

Dr. Mazj also wants me to consider some clinical trials. Having been a trial patient in the past, i know what kind of chaos it is.  But, I will give them full consideration like I said I would.  At least I know what to look for in the trial paperwork.

I'm keeping one thing very much in mind:  This news could have been much, much, much worse.  It's not great, but it could have been MUCH worse.

SO!! All of that being said.... As I mentioned, I'm sick. I've got the virus with the cold sores, and a few slight on and off fevers. I've got something nasty in my chest which involves multicolored goop, for which I've been ordered on to antibiotics. AND, apparently one or two types of blood counts are low, and Dr. Mazj is NOT pleased, so for once, instead of just taking my blood, they're actually going to give me some.

I went up today for a quick draw so they could do the type and cross required for a transfusion, I'm all labeled now, and I'm to be there at the hospital tomorrow at 9 am for a five-hour transfusion. Doesn't that sound like fun? Whee! I guess I'll get in some good reading or napping time!

And speaking of napping, I am very late getting started on THAT today too, so off I go. I think I've caught up here, and I am truly sorry for the omission. My body says it's time to rest now....
xoxoxo

Thursday, March 31, 2011

Wellllll, here we go again...

Ahhhh, the very early am before the latest CT result appointment.

A couple of hours ago, I really would have told you I wasn't terribly concerned - and I wasn't. I still don't *feel* concerned, worried, whatever, but it's 3:30 am, my first attempt at sleeping was a complete waste of time, and here I am. I really am interested in the results of this one in a *very-almost" clinical way.

Up through my previous test, I'd been receiving a drug called Taxol. Each scan showed very slight growth on the nodules, but nothing "medically significant," in their parlance. Well, that either meant the drug was keeping the nodes from growing more than a teeny bit, or it meant it was doing absolutely nothing at all, and the nodules would have grown that much anyway.

So, right after the last scan, we switched to a new drug, Topotecan. I've been on that once a week; three weeks on, one week off, since the beginning (some typo I just made converted "beginning" into "stinking.". This entertains me to no end!!!) {sorry -} of the calendar year, and this will be the first test to see if it's actually done anything.

As I see it, there are basically three possible outcome/inference sets to this test.
A) a marked, "medically significant" reduction in the size or number of nodules in the lung, which would lead us to infer that the Topotecan is working quite well.
B) a small, not "medically significant" growth in either the size and/or number of the nodules, which would leave us once again unsure if the drug was working, in keeping the growth minimal; or not working at all, letting the cancer move at it's own snail-y pace.
Or
C) a marked, very significant (medically or otherwise!) growth in size or number of the nodules in the lungs, or worse (yes, there *is* a "worse!"), spread of the cancer to any other part of my body. That is the worst result I can imagine.

Yes, that is the worst possible outcome, which was why I was so terrified of the brain scan.

SO, it is now time for me to go get showered and lovely for my drive up the mountain. It's starting to be my favorite time of year to make the drive - the hills are all lush green, and the wildflowers are starting to pop out everywhere, like brushstrokes of color splashed on the dark green backdrop. If I can ever remember to hunt for a good stopping and parking place near where I can see anything - and if I can FIND such a thing, I will try my damnedest to get some good pictures this year. It is better in person though, hint, hint....so you should come visit to see for yourself. 8•)

Off to get ready - appointment at 11:15, and I promise to text, tweet, blog and Facebook my test results as soon as I get 'em. Gotta love having WiF at the cancer center!!

Monday, March 28, 2011

Water, water, water...

This is the flood plain for the Sacramento River near Andy's office.
We normally come from that direction, but large parts of the road we take are rather underwater at the moment. We had to come the long way today...but of course we had to go look at the flood!
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Sunday, March 27, 2011

Braaaaaaaiiiiiins!

Zombies around the world, rejoice!

My brain has been certified clean and tumor free! Yes, I'm as shocked as some of you are.

As I'd posted before, I wasn't supposed to get to know that yet - but, a fantastic chemo nurse happened to notice that the results were in my file, and since they were positive-happy/negative-nothing in there, she called the doctor at his conference to get permission to share them with me in his absence.

She assured me that the rest of the test results (the chest/abdomen/pelvis scan) were not in the file, and most likely would take at least a couple more days. I can deal with that.

I don't actually have another single thing to share right now, but I really don't care. I'm thrilled to have those test results already - and not be waiting until the 31st to find out - and otherwise, I'm just trying to get through the post-chemo ickies. I feel pretty icky. I woke up on my own about an hour early from my nap, and I strongly wish I hadn't. The headache is *bad* and the body aches are absolutely *vicious* AND a certain kitty cat thinks I'm a jungle gym to be walked all over.

Time for some more resting. BOOO for pain, but YAY for a tumor-free brain!

Friday, March 25, 2011

No news is no news


Look, Easter egg condoms!!

Dr. Mazj is out- yesterday & today. Thus, there will be no learning of CT results today, or probably any time.before my appt on the 31st. Ah, well.
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Wild weather and mundane updates!

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Well, we didn't get quite the exciting tornados and .5" hail that towns within a half hour's drive caught, but it's been interesting around here nonetheless! Yesterday, we were getting wind gusts anywhere up to 70mph, and WE, lucky us, go to go drive around in it.

Our first stop was the dentist, to have my final fitting for my neato new set of teeth. I thought I was taking them home... And when Katie told me I wasn't, I actually almost cried. It's been a very long trip, this dental odyssey. I think I started this back in October - or was it November? Anyway, its been a lomg trip of extractions, filling, root canal-ing, crowns, temporary teeth and impressions, and I am SOOOOOO excited at the thought of being finally done. Being finally done will mean that (after a short -hopefully - acclimation process), I will actually be ale to eat like a normal person again! I might be able to go back to doing things like eating three apples a day, and having carrots for snacks, and making little dishes of warm mixed nuts to munch on, put my popcorn maker back into use.........oh, so many things!

But I have to wait. Almost a whole month more, I have to wait. All of this makes me very sad.

So, next order of business was getting some food before we went up the mountain, into the unknown manifestation of the storm, at the higher altitude. I was really upset after the dentist, didn't feel much like eating, didn't care what I ate, so Lloyd picked Arby's. While we were still waiting to be served, my phone rings - it's the cancer center telling me they have no power. So much for chemo!!

Since our need to hurry was gone, we ditched Arby's, and tried a new Mexican place we'd seen on tv (La Comida, Oroville) and then took me and my piss-poor mood home to bed. I needed that.


Comfy, squishy fuzzy kitty always helps too.
Oliver is my bedroom cat. He takes every chance to snuggle in bed. Then when he's done snuggling he climbs up my pillows and curls up there behind my head, blends in with the stuffed animals and goes to sleep.

Unfortunately, during my nap, I manage to have a big whopping sleepwalking/talking/whatever incident, and Lloyd tells me it was a doozie. That makes me really wonder about a connection between the level of my anxiety and stress & the having of and level of these nocturnal crazy fits. Yesterday I was at least a level 8 or 9 on the scale yesterday, between the teeth and not going to chemo

Ok....on to the important stuff.... Yes, I did have my CT, scanned from pelvis, abdomen, chest and head. I'm going to guess that my neck was somewhere in there too. You could say that I'm a tad nervous about the results.

Not going to chemo meant no possibility of finding out yesterday. I'm rescheduled for this am, but I think my doc is off today. The whole place shuts down early on Fridays.

So, time to go get dressed and enjoy my insanely high level of anxiety and stress!!!!

There is lots more to say here, about many more things, but time was limited and I had to get out the test non-update and such. Besides, I need more time to think.... I will try to write more from chemo, and try to address some of the issues that have been coming up on here.
For now, I'm outta here. 8•)

Friday, March 18, 2011

Nothing to fear but fear itself, and running out of Xanax

Except maybe earthquakes, tsunamis, brain CTs, possible cluster headaches, and the idea that cancer could even possibly move to your brain.

Yes, boys and girls, it's been a very busy, newsy news week this week. The gerbils who run the prescription TAR department at the lovely agency which is paying for my cancer treatment decided I should deal with everything for about 2, 3 weeks sans anxiety medicine. Isn't that fun, boys and girls? Cold-turkey Xanax withdrawal plus worrisome symptoms to discuss with my doctor... Well, let's just say that as soon as I was done outlining my current life & worries for Dr. Mazj, he made sure he ordered up a nice dose of Anxiety-B-Gone(tm) to be shot into my IV just as soon as I had an IV running. He is a wonderful doctor. Thank the pagan deity of your choice that I'd been back on my usual dose for a whole two days before Godzilla started stomping around in Japan.

{insert a week of bad, bad procrastination here}

So, after yet another chemo, durng which I was falling asleep trying to write this, here I am with an actual blog entry, with actual information to share.
It's CT time again!!..

The appointment is on the 23rd and I have an appointment with Dr, Mazj far too many days after that to learn my fate - not till the 31st.

What's very, very different this time, and rather noteworthy, Is that my scan will cover not just pelvis, abdomen and chest, but will also go up to do a full brain scan. Yes, I said brain.

We all know I've been having some nice little weirdness with sleepwalking, or just space- walking, not remembering anything, and generally acting like I've totally lost it in countless embarrassing ways. I've also been having some very nasty headaches that are somewhere between migraines and cluster-headaches. My grandfather had clusters, and I've seen firsthand how scary they are.

We also all know that many cancers have a nasty habit of spreading to the brain, and unfortunately, mine is one of them.

That's why this has been so hard to write, and taken me so long to post. This is one scan I don't want to have. My grandfather also had cancer; actually both of them did; but the grandpa I was closest to devastated me most. I saw his cancer spread from his lungs to his brain, so you can see where my fears come from. It's too close for comfort.

I'm not sure how many times during this little adventure I've felt deep, outright terror - more than a few. This is one of them. I do not want to have this scan. I do not want to hear the results of this scan.

I do not want to have to tell all of you the results of this scan if they are bad. That is the worst, worst, worst part of the entire thing... But I will have the scan and I will tell the truth. It's just so much fun having your life in so many other people's hands.
Fuck.

Tuesday, March 15, 2011

The last one, promise

Hey, *having* hair is a big deal!
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And more...

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More hair...

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Sunday, February 27, 2011

A cold puppy & a big question

Ok, there's the cold puppy!
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Charlie Brown & Snoopy always maintained that happiness was a warm puppy, so I had to wrap mine up in a blankie after she went out to get the paper in the gorgeously clear 40° sunshine this morning. About an hour and a half later, she's still there, quite content.

Now onto my big question. This is going to take some setting up and backstory, so bear with me for a while here.

Part one - about a month or so back (definitely after Christmas, so mid-Jan, tops) there was a story on the news about a local girl who had cancer as well as several other disabilities and had had her wheelchair stolen when her mother's car was stolen. The story centered on how the loss of the chair was more than just the loss of her mobility - it was the loss if her freedom to go places with her mother and be out of the house. I can't remember how old she was - I'm thinking maybe 11 or 13 or somewhere in there - but I remember how she looked and sounded in the piece.

That is the important part. She looked and sounded as "well" as any person with multiple disabilities, but she was alert, and seemed "fine," for lack of a better word, wanting to get her wheels back so she could go out places with her mom. Totally fine.

Now, of course, within a day or two, a kind person in the community gave her a new set of wheels, a chair better and nicer than the one she'd lost, but that's not really germane.

The important part of this story is that there was another follow-up story about her on the news this week. She DIED. Died!

A month or two ago, she looked totally fine and now she's gone.

Part two - On January 21, a friend emailed me on Facebook letting me know that her father had also been diagnosed with stage IV cancer, just like me. (I don't know what kind though) By February 5, her Facebook wall was covered in condolence messages. He passed away within two weeks of getting a diagnosis. Two weeks.

By now, I'm quite sure you all know that I write this blog very candidly, and talk about big icky subjects like death very candidly. That's not to imply any disrespect to anyone or lack of empathy; it's simply the way I have to talk about these things, because they are so close to my own life.

So, can you see where this is going?

My big question is, How do you know you're dying?
Seriously. If it can happen so quickly (I'm really talking about cancer patients specifically here), relative to feeling "fine," then how do you know? What does it feel like? Do you experience some sort of very obvious change or symptom or feeling that tells you, "Ok, this is it?"

These are things I need to know!

I always figured it would be something pretty gradual (obvious, but gradual; and again, talking about cancer) where you'd start to decline, and then you'd know that it was time to start writing all those letters, giving some stuff away, paying your way into the Neptune Society - you know, getting your affairs in order.

Of course, I'm well aware that any of us could be hit by a beer truck or a piece of green ice falling from a 747 at any moment, and that would be that, over and done, but I really did think cancer was different.

And, of course, I'm well aware that I'm not going to get an answer to this question; or at least not one that I like. But this is what's on my mind right now - wondering if I should start writing those letters. Just in case.

Friday, February 25, 2011

"On generator... "

Well, It's coming down now! They cancelled all surgeries, but *I* get to go in on generator power.

Oh, whee.
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Snow!

If ya gotta go get things shoved up your butt, at least some pretty snow is nice. I tried an angel with very little luck.

However, luckily, the nasty nurse I got at first was just sent away and replaced with a nice one. Whew.

See all y'all on the other side!
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Wednesday, February 23, 2011

Arrrgh!

Ok, I owe you guys a much better blog entry than you're going to get tonight. I promise to keep trying to get there...maybe during chemo?

To sum things up for now: tummy angry, mood crabby, want sleep now. Tomorrow is chemo, Thursday is Bathroom Decor Appreciation Day, and Friday is my colonoscopy. Weekend off, then Monday with Andy followed by Tuesday-Monday with my dogs, on my bed, hopefully asleep more often than not.

More to come...
Think happy thoughts. Be well. Send bonbons.

Tuesday, February 15, 2011

Happy VD to all!

Flowers yesterday from my sweet husband, and the completion today of ALL my dental work....!

How sweet it is...
(gotta go sleep off the gas now...)
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•••••••••

Ahh, I slept almost all of he gas off... I woke up feeling really good, albeit still very physically tired.

Today marked the end of a serious dental marathon. I didn't have good teeth to start with, but the chemo just ate them. Many fillings, root canals, crowns and extractions later, and I'm DONE!! The next couple of visits will be just to get my new partial bridge/dentures to fit in my mouth, and THEN, I will regain the ability to chew again! Major YAY in my world.

Still tired....chemo tomorrow....time to rest.

Friday, February 4, 2011

Bllrggglgarff

I thig I hab a code.

Achoo!

Friday, January 28, 2011

Well, it's been a week..pppffffffffttt

I can't say it's been a great week, but it's been a week.

First my poor doggie's butt explodes. This should have been a sign.

After doing all of that distgusting "prep" for the colonoscopy, I managed to have a diabetic blood sugar crash, mainly because I had no idea what I should have been doing all day to manage the fasting. So, after all the fasting and the Roto-Rootering of my insides to clean them out for the exam....No test. just an embarrassing late-night conversation with my doctor, an angry tummy, and, yes...(wait for it...) a return date next month to do it all again.

Great start.
Apparently, after having all day Tuesday and Wednesday to percolate in my system, the clean-out stuff decided to make a repeat visit. A bad one, apparently the precise millisecond I was waking up. This meant washing sheets, brand new pjs going in the trash, lots of cleaning, and a whole day of misery with a whopping side of humiliation.

(Hey, you people want to read an honest cancer blog, you're in the right place. A happy, tidy one without diarrhea or adult sanitary products? Try again.)

Luckily, thanks I'm sure to the massive, excessive doses of imodium and adult sanitary products, I made it TO and THROUGH chemo without further incident.

Of course, somewhere in the course of the day, my cell phone froze up, and refused to unfreeze. Of course. So, after our nice dinner at Marie Callendars (and following the crushing disappointment of Sees, the Source Of All Bonbons, being closed) we hopped on over to the Verizon store, where a very nice new friend named Patricia swapped it out with a functioning one. Lots of re-customizing, and I have to re-do my entire ICE medical app, but those are minor concerns in the face of what could have been, had I lost all my contacts, photos and random data. Someday I really need to learn how to back that thing up...

And then we came home, and I barfed a lot.

That brings us to yesterday, the day I started this entry, the day in which this entry started posting itself to the blog long before it was done, just because the tech gremlins wanted to prove that they could. Yesterday started with me feeling terrible. It ended with me feeling terrible - nothing terribly shocking for the day after chemo and a major intestinal explosion.

The real capper was a just-before-bedtime random discussion which spontaneously mutated from a discussion into a teenage tantrum. I meant no harm at all in the discussion, which was simply another variant on the "kids who refuse to leave their computers" topic, but I apparently hit a really sore spot without knowing it. That made me feel like absolute shit. It always does, if I hurt someone's feelings, because I never, ever, ever try to intentionally hurt someone's feelings. The fact that the tantrum-throwing boy seems to think that it is always my intention to hurt him or attack him directly for no reason hurts MY feelings pretty good too though. Being the Evil StepMonster does get very, very old after a while. But, I grit my teeth and take my anxiety pills and make sure they never see me crack as I retreat to my corner and chant my mantra, "when they're thirty...when they're thirty..." under my breath. I figure since actually telling them that my feelings are hurt (or are capable of being hurt) just makes them scornful, to say the least, letting them see it would result in precisely nothing good.

Ahhh, a lovely end to a lovely day!!
Things like that deepen my resolve to read "Battle Hymn of the Tiger Mother," just to read about a "mother" (& I use that term loosely here) who is far and away worse at the job than I am.

•••• Have you heard of this book?! It's all over the magazine reviews right now; a memoir by a woman determined to raise her two daughters "the Chinese way," and in the course of doing so, does things like call her little girl "garbage" for less-than-perfect piano skills, threaten to burn all her stuffed animals if the piece isn't played perfectly the next time and reject handmade birthday cards from both girls because they didn't show enough effort. Good lord. And yet, while I think the woman should have been jailed for child abuse (she made her three-year-old stand outside in the rain at night for yet another musical imperfection), she is oft-quoted often saying ONE thing that has my attention - "Chinese parents assume strength, not fragility." Hrm. Hrm. I admit, I'm intrigued. ••••

But ANYway, it was a less than stellar week. I am really, really hoping that this weekend provides a nice buffer and leads to a pleasant no-chemo week ahead. Admittedly, I have a dentist appointment, and one with Andy, but I'm still looking forward to a poison-free few days to let my system rebound a bit.

Back on the subject of parenting for just a minute though - I found another magazine article that was particularly interesting. Time magazine, January 31, page 17: "How Video Games May Contribute to Mental Illness." Oh, how I wish this article had come out when these boys were younger...we might have fought harder, instead of completely giving up in the battle over restricting computer use time.

The study cited in the article looked at associations between personality, gaming and future mental disorders. One finding is that kids with impulsive personalities, less empathy for others and poor social skills were more likely to become pathological gamers. Uh huh, I'm listening... These kids ended to log nearly twice as much computer time weekly compared to their peers. "Addicted gamers also tended to be more aggressive and antisocial." But most disturbingly, the study also found that pathological, addicted gamers were at a higher risk of developing mental conditions like depression, anxiety and social phobias within a couple of years. All of the study results seem to counter the popular belief that some teens play as a way to cope with existing mental illness. Instead, the latest results demonstrate that the relationships between addictive gaming and mental health are more complicated than we thought, "with mental disorders being both contributors to and consequences of video-game dependence."

Yup.

I hate to say it, but every single point made in the article could be illustrated inside this household. If your kids are young enough to stop this behavior before it starts, grab that chance and run with it. With our boys, at least, I can safely say that almost every, and I do mean almost every - say, 99 of 100 - argument or conflict we have is rooted in that pathological, obsessive gaming and the void it creates, suspending time so that chores, homework and even dinnertime are at the least, very annoying interruptions to their very important business of game playing and more often, reason for explosion. They haven't got the slightest idea why we find this to be a bad thing; unacceptable, or why we continue to intrude on them the way we do. That is the scariest part, right there - they really think that their game play is as important, if not more so than any events in the real world.

Well, it scares the crap out of *me* anyway.

Here's hoping for a very uneventful weekend. Cross your fingers and toes for me, ok?

Tuesday, January 25, 2011

NO colonoscopy!

Yep, you read that right, and nope, no early morning hospital run. Lucky me, after going through all of the HELLISH "prep" today, my diabetes decided to kick in and drop my glucose out from under me, leading to a frantic sugar push, a very miserable night, and a mortifying late-night phone conversation with my surgeon.

Between the exploding-butt dog and my not-happening butt surgery, it's been a really lovely day.

Trust me.

Sunday, January 23, 2011

A bigger-bigger bed!

This, dear readers, is why the world needs to make a bigger bed available to the general public.

When you think about it, the PetKing(tm) size would be an instant hit! As long as a Cal-King, and as wide as a std King plus, oh, maybe a full/double as well and Bingo! You've actually got a mattress big enough for two normal sized people and at least 3 largish dogs, with spare corners for a pussycat here or there.

It would be revolutionary!

Now we just need them to make bigger sheets...and bedrooms... But I really think I'm onto something here.

SNL + Sees Candy = strange ideas
:-)
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Friday, January 21, 2011

Books, books, books!!

I've had more than few requests from friends for "good" books to read lately. Well, I am the girl to ask!!

Being cancer girl means that I've probably got more reading time on my hands than all the rest of my friends combined. I guess it's a good thing I'm such a book-fiend, although it always makes me feel guilty when I sit down and lose myself in a book for hours instead of finishing a knitting project or something else "productive." Ahh, "productivity," the eternal guilt-producing specter that hangs over my head.

I mean, right now, I'm feeling ridiculously tired, beat and battered in the manner of a massive chemo side-effect attack with a good dose of fibro-fun on top of it. My legs ache and are throbbing from hips to toes, which makes even standing up an unpleasant experience, but everyone else in the house is doing their normal Sunday chores, so I feel intense guilt for sitting here on my bed like a lump. ::sigh::

I passionately hate guilt.

But, considering that tomorrow I will have to take a little spotty dog to the vet to get his poor butt fixed (impacted anal gland), and then spend the entire afternoon doing the disgusting "prep" for my colonoscopy - aka getting MY butt fixed - I have got to force myself to take the rest while I can get it.

But ANYway, about books - I figure I might as well share some of what I've been reading for those who are looking for a good book. I haven't been very good at populating the " useless information" trivia column lately, so I'm thinking that book reviews may move into that space for posterity.

Recently, I've been on this "comedian" kick and have been reading autobiographies of some very funny people. I can recommend Sarah Silverman's "The Bedwetter: Stories of Courage, Redemption and Pee" and Kathy Griffin's "Official Book Club Selection" very highly. I've also read all three of Chelsea Handler's books recently, and I can't stress enough how different her books are from Silverman or Griffin. Chelsea's books are humor, written to be funny, and they are, most of the time. Silverman and Griffin are writing very real autobiographies in the warts-and-all tradition, showing themselves to be very intelligent women (much more than you realize at first) who have worked very hard to get where they are and also happen to be very, very funny.

I would highly recommend Griffin's book as a fascinating look at the reality of being a working actress and comedian, someone who was not an overnight sensation, but who worked her ass off to get where she is today. Sarah Silverman's book is different in that spends a little more time in her childhood, fighting the chronic bedwetting mentioned in the title, but it is no less engaging. Either of them is going to be a funny, very satisfying read. And Chelsea? If you can take the raunch, you'll laugh your ass off.

Ok, there are my first book recommendations. Hopefully someone out there will find them interesting!